An international, multidisciplinary consensus set of patient-centered outcome measures for substance-related and addictive disorders

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• dc.contributor.author Black, Nicola
• dc.contributor.author Torrens, Marta
• dc.contributor.author Farrell, Michael
• dc.date.accessioned 2025-02-03T15:18:01Z
• dc.date.available 2025-02-03T15:18:01Z
• dc.date.issued 2024
• dc.description.abstract Background: In 1990, the United States' Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. Methods: To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience (n = 5; 19%), convened over 16 months (December 2018-March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. Results: The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Conclusions: Use of consistent and meaningful outcome measurement facilitates carer-patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.
• dc.format.mimetype application/pdf
• dc.identifier.citation Black N, Chung S, Tisdale C, Fialho LS, Aramrattana A, Assanangkornchai S, et al. An international, multidisciplinary consensus set of patient-centered outcome measures for substance-related and addictive disorders. J Clin Med. 2024 Apr 8;13(7):2154. DOI: 10.3390/jcm13072154
• dc.identifier.doi http://dx.doi.org/10.3390/jcm13072154
• dc.identifier.issn 2077-0383
• dc.identifier.uri http://hdl.handle.net/10230/69455
• dc.language.iso eng
• dc.publisher MDPI
• dc.relation.ispartof J Clin Med. 2024 Apr 8;13(7):2154
• dc.rights © 2024 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
• dc.rights.accessRights info:eu-repo/semantics/openAccess
• dc.rights.uri http://creativecommons.org/licenses/by/4.0/
• dc.subject.keyword Delphi
• dc.subject.keyword ICHOM
• dc.subject.keyword Addiction
• dc.subject.keyword Addictive disorders
• dc.subject.keyword Consensus set
• dc.subject.keyword Core outcome set
• dc.subject.keyword Gambling disorder
• dc.subject.keyword Gaming disorder
• dc.subject.keyword Outcome measures
• dc.subject.keyword Patient-centered
• dc.subject.keyword Substance use
• dc.title An international, multidisciplinary consensus set of patient-centered outcome measures for substance-related and addictive disorders
• dc.type info:eu-repo/semantics/article
• dc.type.version info:eu-repo/semantics/publishedVersion