Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA

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• dc.contributor.author Selva, Anna
• dc.contributor.author López, Pilar
• dc.contributor.author Puig, Teresa
• dc.contributor.author Macià Guilà, Francesc Assís
• dc.contributor.author Selva, Clara
• dc.contributor.author Álvarez-Pérez, Yolanda
• dc.contributor.author Terraza, Rebeca
• dc.contributor.author Burón, Andrea
• dc.contributor.author Machlab, Salvador Tarek
• dc.contributor.author Pericay, Carles
• dc.contributor.author Solà, Ivan
• dc.contributor.author Torà, Núria
• dc.contributor.author Rodríguez, Vanesa
• dc.contributor.author Barrufet González, Cristina
• dc.contributor.author Aymar, Anna
• dc.contributor.author Baré, Marisa
• dc.date.accessioned 2022-10-11T07:13:44Z
• dc.date.available 2022-10-11T07:13:44Z
• dc.date.issued 2022
• dc.description.abstract Introduction: colorectal cancer (CRC) screening programmes can reduce incidence and mortality from this condition if adherence to them is high. As patient experience and satisfaction are key factors in determining adherence to screening programmes, they need to be measured. Furthermore, to promote highly patient-centred healthcare, the perception of patients regarding shared decision-making during CRC screening needs to be known. This study aims to assess the experience, satisfaction and participation in decision-making of participants in a CRC screening programme and of patients diagnosed with CRC through this programme in relation to the diagnostic and therapeutic processes of cancer. Methods and analysis: the CyDESA study is a mixed-methods study with a four phase sequential design. In phase 1, we will conduct a systematic review of patient-reported experience measures (PREMs) for patient experience or satisfaction with CRC screening. In case no located PREM can be applied, in phase 2, we will develop a new PREM. We will use the Delphi methodology to reach consensus among experts and patients and will conduct a pilot test of the developed PREM. Phase 3 is a multicentric cross-sectional study based on self-reported questionnaires that will be conducted at three Spanish hospitals (n=843). The objective is to find out about the experience, satisfaction and participation in decision-making of participants in the CRC screening programme who have had a positive screening test result according to their final screening diagnosis: false positives, colorectal polyps or CRC. Phase 4 is a qualitative phenomenological study based on individual interviews. It will explore the experiences of participants in the CRC screening programme and of those diagnosed with CRC. Ethics and dissemination: ethics approval by the Ethics Committees of Corporació Sanitària Parc Taulí, Hospital de Sant Pau and Parc de Salut Mar. Findings will be published in peer-reviewed journals and presented at conferences.
• dc.format.mimetype application/pdf
• dc.identifier.citation Selva A, López P, Puig T, Macià F, Selva C, Álvarez-Pérez Y, et al. Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA. BMJ Open. 2022 May 30;12(5): e057687. DOI: 10.1136/bmjopen-2021-057687
• dc.identifier.doi http://dx.doi.org/10.1136/bmjopen-2021-057687
• dc.identifier.issn 2044-6055
• dc.identifier.uri http://hdl.handle.net/10230/54351
• dc.language.iso eng
• dc.publisher BMJ Publishing Group
• dc.rights This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
• dc.rights.accessRights info:eu-repo/semantics/openAccess
• dc.rights.uri http://creativecommons.org/licenses/by-nc/4.0/
• dc.subject.keyword Colorectal cancer screening
• dc.subject.keyword Colorectal neoplasms
• dc.subject.keyword Decision Making, Shared
• dc.subject.keyword Patient experience
• dc.subject.keyword Patient satisfaction.
• dc.title Patient experience, satisfaction and shared decision-making in colorectal cancer screening: protocol of the mixed-methods study CyDESA
• dc.type info:eu-repo/semantics/article
• dc.type.version info:eu-repo/semantics/publishedVersion