Parent–child agreement on health-related quality of life (HRQOL): a longitudinal study
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- dc.contributor.author Rajmil Rajmil, Luis Albertoca
- dc.contributor.author Rodríguez López, Amandaca
- dc.contributor.author López Aguilà, Sílviaca
- dc.contributor.author Alonso Caballero, Jordica
- dc.date.accessioned 2015-06-12T07:37:51Z
- dc.date.available 2015-06-12T07:37:51Z
- dc.date.issued 2013ca
- dc.description.abstract Background: Few studies have evaluated changes on parent–child agreement in HRQOL over time. The objectives of the study were to assess parent–child agreement on child’s HRQOL in a 3-year longitudinal study, and to identify factors associated with possible disagreement. Methods: A sample of Spanish children/adolescents aged 8–18 years and their parents both completed the KIDSCREEN-27 questionnaire. Data on age, gender, family socioeconomic status (SES), and mental health (Strengths and Difficulties Questionnaire, SDQ) was also collected at baseline (2003), and again after 3 years (2006). Changes in family composition were collected at follow-up. Agreement was assessed through intraclass correlation coefficient (ICC), and Bland and Altman plots. Generalizing Estimating Equation (GEE) models were built to analyze factors associated with parent–child disagreement. Results: A total of 418 parent–child pairs were analyzed. At baseline the level of agreement on HRQOL was low to moderate and it was related to the level of HRQOL reported. Physical well-being at baseline showed the highest level of parent–child agreement (ICC=0.59; 0.53-0.65) while less “observable” dimensions presented lower levels of agreement, (i.e. Psychological well-being: ICC= 0.46; 0.38-0.53). Agreement parent–child was lower at follow-up. Some interactions were found between rater and child’s age; with increasing age, child scored lower than parents on Parents relationships and Autonomy (Beta [B] -0.47; -0.71 / -0.23) and the KIDSCREEN-10 (−0.49; -0.73 /-0.25). Conclusions: Parent–child agreement on child’s HRQOL is moderate to low and tends to diminish with children age. Measuring HRQOL of children/adolescents mainly in healthy population samples might require direct self-assessments.en
- dc.description.sponsorship This study represents the Minor Thesis of Amanda Rodríguez López to achieve the Master in Public Health degree at Pompeu Fabra University (Barcelona, Spain).en
- dc.format.mimetype application/pdfca
- dc.identifier.citation Rajmil L, López AR, López-Águila S, Alonso J. Parent–child agreement on health-related quality of life (HRQOL): a longitudinal study. Health and quality of life outcomes. 2013;11:101. DOI: 10.1186/1477-7525-11-101ca
- dc.identifier.doi http://dx.doi.org/10.1186/1477-7525-11-101
- dc.identifier.issn 1477-7525ca
- dc.identifier.uri http://hdl.handle.net/10230/23800
- dc.language.iso engca
- dc.publisher BioMed Centralca
- dc.relation.ispartof Health and quality of life outcomes. 2013;11:101
- dc.rights © 2013 Rajmil et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.en
- dc.rights.accessRights info:eu-repo/semantics/openAccessca
- dc.rights.uri http://creativecommons.org/licenses/by/2.0
- dc.subject.keyword Adolescentsen
- dc.subject.keyword Health-related quality of lifeen
- dc.subject.keyword Longitudinal studiesen
- dc.subject.keyword Parent–child agreementen
- dc.subject.keyword Proxyen
- dc.subject.other Pares i fillsca
- dc.subject.other Qualitat de vidaca
- dc.title Parent–child agreement on health-related quality of life (HRQOL): a longitudinal studyen
- dc.type info:eu-repo/semantics/articleca
- dc.type.version info:eu-repo/semantics/publishedVersionca