Health-related quality-of-life instruments for Alzheimer's disease and mixed dementia

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  • dc.contributor.author Perales Puchalt, Jaime, 1985-ca
  • dc.contributor.author Cosco, Theodore D.ca
  • dc.contributor.author Stephan, Blossom C.M.ca
  • dc.contributor.author Haro Abad, Josep Mariaca
  • dc.contributor.author Brayne, Carolca
  • dc.date.accessioned 2015-04-29T09:12:20Z
  • dc.date.available 2015-04-29T09:12:20Z
  • dc.date.issued 2014ca
  • dc.description.abstract BACKGROUND: Over the last 20 years, a number of instruments developed for the assessment of health-related quality of life (HRQL) in dementia have been introduced. The aim of this review is to synthesize evidence from published reviews on HRQL measures in dementia and any new literature in order to identify dementia specific HRQL instruments, the domains they measure, and their operationalization. METHODS: An electronic search of PsycINFO and PubMed was conducted, from inception to December 2011 using a combination of key words that included quality of life and dementia. RESULTS: Fifteen dementia-specific HRQL instruments were identified. Instruments varied depending on their country of development/validation, dementia severity, data collection method, operationalization of HRQL in dementia, psychometric properties, and the scoring. The most common domains assessed include mood, self-esteem, social interaction, and enjoyment of activities. CONCLUSIONS: A number of HRQL instruments for dementia are available. The suitability of the scales for different contexts is discussed. Many studies do not specifically set out to measure dementia-specific HRQL but do include related items. Determining how best to operationalize the many HRQL domains will be helpful for mapping measures of HRQL in such studies maximizing the value of existing resources.
  • dc.description.sponsorship This work was supported by the Instituto de Salud Carlos III with a predoctoral grant (PFIS)
  • dc.format.mimetype application/pdfca
  • dc.identifier.citation Perales J, Cosco TD, Stephan BC, Haro JM, Brayne C. Health-related/nquality-of-life instruments for Alzheimer's disease and mixed dementia. Int Psychogeriatr. 2013;25(5):691-706. DOI: 10.1017/S1041610212002293ca
  • dc.identifier.doi http://dx.doi.org/10.1017/S1041610212002293
  • dc.identifier.issn 1041-6102ca
  • dc.identifier.uri http://hdl.handle.net/10230/23490
  • dc.language.iso engca
  • dc.publisher Cambridge University Pressca
  • dc.relation.ispartof International Psychogeriatrics. 2013;25(5):691-706
  • dc.rights © Cambridge University Press. The published version of the article: Perales J, Cosco TD, Stephan BC, Haro JM, Brayne C. Health-related/nquality-of-life instruments for Alzheimer's disease and mixed dementia. Int Psychogeriatr. 2013; 25(5): 691-706 is available at http://journals.cambridge.org/action/displayJournal?jid=IPGca
  • dc.rights.accessRights info:eu-repo/semantics/openAccessca
  • dc.subject.other Alzheimer, Malaltia d'
  • dc.subject.other Demència
  • dc.subject.other Qualitat de vida
  • dc.title Health-related quality-of-life instruments for Alzheimer's disease and mixed dementiaca
  • dc.type info:eu-repo/semantics/articleca
  • dc.type.version info:eu-repo/semantics/acceptedVersionca