Long-term risks after kidney donation: how do we inform potential donors? A survey from DESCARTES and EKITA transplantation working groups
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- dc.contributor.author Mjøen, Geir
- dc.contributor.author Crespo Barrio, Marta
- dc.contributor.author Abramowicz, Daniel
- dc.date.accessioned 2022-07-01T06:46:03Z
- dc.date.available 2022-07-01T06:46:03Z
- dc.date.issued 2021
- dc.description.abstract Background: Publications from the last decade have increased knowledge regarding long-term risks after kidney donation. We wanted to perform a survey to assess how transplant professionals in Europe inform potential kidney donors regarding long-term risks. The objectives of the survey were to determine how they inform donors and to what extent, and to evaluate the degree of variation. Methods: All transplant professionals involved in the evaluation process were considered eligible, regardless of the type of profession. The survey was dispatched as a link to a web-based survey. The subjects included questions on demographics, the information policy of the respondent and the use of risk calculators, including the difference of relative and absolute risks and how the respondents themselves understood these risks. Results: The main finding was a large variation in how often different long-term risks were discussed with the potential donors, i.e. from always to never. Eighty percent of respondents stated that they always discuss the risk of end-stage renal disease, while 56% of respondents stated that they always discuss the risk of preeclampsia. Twenty percent of respondents answered correctly regarding the relationship between absolute and relative risks for rare outcomes. Conclusions: The use of written information and checklists should be encouraged. This may improve standardization regarding the information provided to potential living kidney donors in Europe. There is a need for information and education among European transplant professionals regarding long-term risks after kidney donation and how to interpret and present these risks.
- dc.format.mimetype application/pdf
- dc.identifier.citation Mjøen G, Maggiore U, Kessaris N, Kimenai D, Watschinger B, Mariat C, et al. Long-term risks after kidney donation: how do we inform potential donors? A survey from DESCARTES and EKITA transplantation working groups. Nephrol Dial Transplant. 2021 Aug 27; 36(9): 1742-53. DOI: 10.1093/ndt/gfab035
- dc.identifier.doi http://dx.doi.org/10.1093/ndt/gfab035
- dc.identifier.issn 0931-0509
- dc.identifier.uri http://hdl.handle.net/10230/53651
- dc.language.iso eng
- dc.publisher Oxford University Press
- dc.rights Copyright © The Author(s) 2021. Published by Oxford University Press on behalf of ERA-EDTA. This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
- dc.rights.accessRights info:eu-repo/semantics/openAccess
- dc.rights.uri http://creativecommons.org/licenses/by-nc/4.0/
- dc.subject.keyword Kidney donors
- dc.subject.keyword Long-term risks
- dc.subject.keyword Transplant professionals
- dc.title Long-term risks after kidney donation: how do we inform potential donors? A survey from DESCARTES and EKITA transplantation working groups
- dc.type info:eu-repo/semantics/article
- dc.type.version info:eu-repo/semantics/publishedVersion