A patient charter for chronic urticaria

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• dc.contributor.author Maurer, Marcus
• dc.contributor.author Albuquerque, Mónica
• dc.contributor.author Boursiquot, Jean-Nicolas
• dc.contributor.author Dery, Elaine
• dc.contributor.author Giménez Arnau, Anna Maria
• dc.contributor.author Godse, Kiran V.
• dc.contributor.author Gutiérrez, Guillermo
• dc.contributor.author Kanani, Amin
• dc.contributor.author Lacuesta, Gina
• dc.contributor.author McCarthy, Jessica
• dc.contributor.author Nigen, Simon
• dc.contributor.author Winders, Tonya
• dc.date.accessioned 2024-09-25T05:57:49Z
• dc.date.available 2024-09-25T05:57:49Z
• dc.date.issued 2024
• dc.description.abstract Chronic urticaria (CU) is the recurring development of wheals (aka "hives" or "welts"), angioedema, or both for more than 6 weeks. Wheals and angioedema occur with no definite triggers in chronic spontaneous urticaria, and in response to known and definite physical triggers in chronic inducible urticaria. Approximately 1.4% of individuals globally will have CU during their lifetime. The itching and physical discomfort associated with CU have a profound impact on daily activities, sexual function, work or school performance, and sleep, causing significant impairment in a patient's physical and mental quality of life. CU also places a financial burden on patients and healthcare systems. Patients should feel empowered to self-advocate to receive the best care. The voice of the patient in navigating the journey of CU diagnosis and management may improve patient-provider communication, thereby improving diagnosis and outcomes. A collaboration of patients, providers, advocacy organizations, and pharmaceutical representatives have created a patient charter to define the realistic and achievable principles of care that patients with CU should expect to receive. Principle (1): I deserve an accurate and timely diagnosis of my CU; Principle (2): I deserve access to specialty care for my CU; Principle (3): I deserve access to innovative treatments that reduce the burden of CU on my daily life; Principle (4): I deserve to be free of unnecessary treatment-related side-effects during the management of my CU; and Principle (5): I expect a holistic treatment approach to address all the components of my life impacted by CU. The stated principles may serve as a guide for healthcare providers who care for patients with CU and translate into better patient-physician communication. In addition, we urge policymakers and authors of CU treatment guidelines to consider these principles in their decision-making to ensure the goals of the patient are achievable.
• dc.format.mimetype application/pdf
• dc.identifier.citation Maurer M, Albuquerque M, Boursiquot JN, Dery E, Giménez-Arnau A, Godse K, et al. A patient charter for chronic urticaria. Adv Ther. 2024 Jan;41(1):14-33. DOI: 10.1007/s12325-023-02724-6
• dc.identifier.doi http://dx.doi.org/10.1007/s12325-023-02724-6
• dc.identifier.issn 0741-238X
• dc.identifier.uri http://hdl.handle.net/10230/61209
• dc.language.iso eng
• dc.publisher Springer
• dc.relation.ispartof Adv Ther. 2024 Jan;41(1):14-33
• dc.rights © The Author(s) 2023. Open Access This article is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/.
• dc.rights.accessRights info:eu-repo/semantics/openAccess
• dc.rights.uri http://creativecommons.org/licenses/by-nc/4.0/
• dc.subject.keyword Angioedema
• dc.subject.keyword Chronic urticaria
• dc.subject.keyword Health care
• dc.subject.keyword Hives
• dc.subject.keyword Patient advocacy
• dc.subject.keyword Wheals
• dc.title A patient charter for chronic urticaria
• dc.type info:eu-repo/semantics/article
• dc.type.version info:eu-repo/semantics/publishedVersion