Listening to the patients’ voice: a conceptual framework of the walking experience

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• dc.contributor.author Delgado Ortiz, Laura
• dc.contributor.author Polhemus, Ashley Marie
• dc.contributor.author Keogh, Alison
• dc.contributor.author Sutton, Norman
• dc.contributor.author Remmele, Werner
• dc.contributor.author Hansen, Clint
• dc.contributor.author Kluge, Felix
• dc.contributor.author Sharrack, Basil
• dc.contributor.author Becker, Clemens
• dc.contributor.author Troosters, Thierry
• dc.contributor.author Maetzler, Walter
• dc.contributor.author Rochester, Lynn
• dc.contributor.author Frei, Anja
• dc.contributor.author Puhan, Milo A.
• dc.contributor.author García Aymerich, Judith
• dc.date.accessioned 2023-06-19T05:53:20Z
• dc.date.available 2023-06-19T05:53:20Z
• dc.date.issued 2023
• dc.description Includes supplementary materials for the online appendix.
• dc.description.abstract Walking is crucial for an active and healthy ageing, but the perspectives of individuals living with walking impairment are still poorly understood. To identify and synthesise evidence describing walking as experienced by adults living with mobility-impairing health conditions and to propose an empirical conceptual framework of walking experience. We performed a systematic review and meta-ethnography of qualitative evidence, searching seven electronic databases for records that explored personal experiences of walking in individuals living with conditions of diverse aetiology. Conditions included Parkinson’s disease, multiple sclerosis, chronic obstructive pulmonary disease, hip fracture, heart failure, frailty and sarcopenia. Data were extracted, critically appraised using the NICE quality checklist and synthesised using standardised best practices.From 2,552 unique records, 117 were eligible. Walking experience was similar across conditions and described by seven themes: (i) becoming aware of the personal walking experience, (ii) the walking experience as a link between individuals’ activities and sense of self, (iii) the physical walking experience, (iv) the mental and emotional walking experience, (v) the social walking experience, (vi) the context of the walking experience and (vii) behavioural and attitudinal adaptations resulting from the walking experience. We propose a novel conceptual framework that visually represents the walking experience, informed by the interplay between these themes. A multi-faceted and dynamic experience of walking was common across health conditions. Our conceptual framework of the walking experience provides a novel theoretical structure for patient-centred clinical practice, research and public health.
• dc.description.sponsorship This work was supported by the Mobilise-D project that has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No. 820820. This JU receives support from the European Union’s Horizon 2020 research and innovation programme and the European Federation of Pharmaceutical Industries and Associations (EFPIA). Content in this publication reflects the authors’ view and neither IMI nor the European Union, EFPIA or any associated partners are responsible for any use that may be made of the information contained herein. ISGlobal acknowledges support from the Spanish Ministry of Science, Innovation, and Universities through the ‘Centro de Excelencia Severo Ochoa 2019–2023’ Programme (CEX2018-000806-S) and support from the Generalitat de Catalunya through the CERCA Programme.
• dc.format.mimetype application/pdf
• dc.identifier.citation Delgado-Ortiz L, Polhemus A, Keogh A, Sutton N, Remmele W, Hansen C, et al. Listening to the patients’ voice: a conceptual framework of the walking experience. Age and Ageing. 2023 Jan 8;52(1):afac233. DOI: 10.1093/ageing/afac233
• dc.identifier.doi http://dx.doi.org/10.1093/ageing/afac233
• dc.identifier.issn 1468-2834
• dc.identifier.uri http://hdl.handle.net/10230/57201
• dc.language.iso eng
• dc.publisher Oxford University Press
• dc.relation.ispartof Age and Ageing. 2023 Jan 8;52(1):afac233
• dc.relation.projectID info:eu-repo/grantAgreement/EC/H2020/820820
• dc.relation.projectID info:eu-repo/grantAgreement/2PE/CEX2018-000806-S
• dc.rights © The Author(s) 2023. Published by Oxford University Press on behalf of the British Geriatrics Society. All rights reserved. For permissions, please email: journals.permissions@oup.com. This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
• dc.rights.accessRights info:eu-repo/semantics/openAccess
• dc.rights.uri http://creativecommons.org/licenses/by-nc/4.0/
• dc.subject.keyword Walking
• dc.subject.keyword Qualitative research
• dc.subject.keyword Chronic condition
• dc.subject.keyword Frailty
• dc.subject.keyword Ageing
• dc.subject.keyword Older people
• dc.title Listening to the patients’ voice: a conceptual framework of the walking experience
• dc.type info:eu-repo/semantics/article
• dc.type.version info:eu-repo/semantics/publishedVersion