Narrative review of citizen science in environmental epidemiology: Setting the stage for co-created research projects in environmental epidemiology

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• dc.contributor.author Froeling, Frederique
• dc.contributor.author Gignac, Florence
• dc.contributor.author Hoek, Gerard
• dc.contributor.author Vermeulen, Roel
• dc.contributor.author Nieuwenhuijsen, Mark J.
• dc.contributor.author Ficorilli, Antonella
• dc.contributor.author De Marchi, Bruna
• dc.contributor.author Biggeri, Annibale
• dc.contributor.author Kocman, David
• dc.contributor.author Robinson, Johanna Amalia
• dc.contributor.author Gražulevičienė, Regina
• dc.contributor.author Andrušaitytė, Sandra
• dc.contributor.author Righi, Valeria
• dc.contributor.author Basagaña Flores, Xavier
• dc.date.accessioned 2022-05-09T06:36:34Z
• dc.date.available 2022-05-09T06:36:34Z
• dc.date.issued 2021
• dc.description.abstract Several citizen science (CS) initiatives have been adopted in environmental science to monitor air and noise pollution, and water quality related to civic concerns. Nevertheless, CS projects in environmental epidemiology remain scarce. This is because little attention has been paid to evaluate associations of environmental exposures with health effects directly. This narrative review aims to promote the understanding and application of CS in environmental epidemiology. There are many commonalities between CS and other participatory approaches in environmental epidemiology. Yet, CS can foster the democratization of scientific governance and enhance the sustainability of research projects more effectively than other existing participatory approaches. This is especially the case in projects where citizens are invited to participate, engage and become involved throughout all the phases of a research project (co-created projects). This paper identifies various challenges and opportunities specific to the implementation of co-created CS projects in environmental epidemiology. The development of more locally relevant research designs, using local knowledge, obtaining medical ethical clearance, and co-analysing the association between exposure and health, are examples of opportunities and challenges that require epidemiologists to go beyond the traditional research framework and include more outreach activities. Continued efforts, particularly the sharing of information about projects' collaborative processes, are needed to make CS a more concrete and cohesive approach in environmental epidemiology.
• dc.description.sponsorship This paper has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 824484. The output reflects the authors' view. The European Commission is not responsible for any use that may be made from the information this paper contains. We acknowledge support from the Spanish Ministry of Science, Innovation and Universities through the “Centro de Excelencia Severo Ochoa 2019-2023” Program (CEX2018-000806-S), support from the Generalitat de Catalunya through the CERCA Program, and the support from EXPOSOME-NL (NWO grant number 024.004.017) and EXPANSE (EU-H2020 Grant number 874627).
• dc.format.mimetype application/pdf
• dc.identifier.citation Froeling F, Gignac F, Hoek G, Vermeulen R, Nieuwenhuijsen M, Ficorilli A, De Marchi B, Biggeri A, Kocman D, Robinson JA, Grazuleviciene R, Andrusaityte S, Righi V, Basagaña X. Narrative review of citizen science in environmental epidemiology: Setting the stage for co-created research projects in environmental epidemiology. Environ Int. 2021 Jul;152:106470. DOI: 10.1016/j.envint.2021.106470
• dc.identifier.doi http://dx.doi.org/10.1016/j.envint.2021.106470
• dc.identifier.issn 0160-4120
• dc.identifier.uri http://hdl.handle.net/10230/53021
• dc.language.iso eng
• dc.publisher Elsevier
• dc.relation.ispartof Environ Int. 2021 Jul;152:106470
• dc.relation.projectID info:eu-repo/grantAgreement/EC/H2020/824484
• dc.relation.projectID info:eu-repo/grantAgreement/EC/H2020/874627
• dc.rights © 2021 The Authors. Published by Elsevier Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
• dc.rights.accessRights info:eu-repo/semantics/openAccess
• dc.rights.uri http://creativecommons.org/licenses/by-nc-nd/4.0/
• dc.subject.keyword Citizen science
• dc.subject.keyword Co-creation
• dc.subject.keyword Environmental epidemiology
• dc.subject.keyword Environmental health
• dc.subject.keyword Participatory research
• dc.title Narrative review of citizen science in environmental epidemiology: Setting the stage for co-created research projects in environmental epidemiology
• dc.type info:eu-repo/semantics/article
• dc.type.version info:eu-repo/semantics/publishedVersion