The national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK
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- dc.contributor.author Evans, Jonathan P.
- dc.contributor.author Smith, Alexander
- dc.contributor.author Gibbons, Chris
- dc.contributor.author Alonso Caballero, Jordi
- dc.contributor.author Valderas Martínez, José María
- dc.date.accessioned 2019-07-05T07:02:17Z
- dc.date.available 2019-07-05T07:02:17Z
- dc.date.issued 2018
- dc.description.abstract The interest in patient-reported outcome measures (PROMs) continues to increase as recognition of their potential utility rises in an effort to make health systems more patient-centered. The US National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System® (PROMIS®) has used state of the art psychometric and statistical techniques to create a universal PROMs language, with potential application across the whole spectrum of health conditions, languages, and geographic locations. PROMIS offers a versatile platform where specific health domains are assessed using both standardized short forms and computerized adaptive tests, which are automatically tailored to individual patients. The scores of each health domain or a standardized profile of multiple domains are all scored on a common metric scale. PROMIS is increasingly recognized as the international gold standard for patient-centered assessment, although the use of these tools in the UK is limited. In this review, the developmental methodology of the PROMIS is described with discussion of its relevant strengths and limitations for use in the UK. We provide a case study of the largest application of the PROMIS tools in the UK as an example of straightforward integration into health-care research. Barriers to the uptake of PROMIS in the UK include the technology requirement, measurement tradition, and lack of a clear understanding of its benefits, and although potential stakeholders should cautiously consider its use, its impressive potential and increasing international utilization should be recognized.
- dc.format.mimetype application/pdf
- dc.identifier.citation Evans JP, Smith A, Gibbons C, Alonso J, Valderas JM. The national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK. Patient Relat Outcome Meas. 2018 Oct 24;9:345-52. DOI: 10.2147/PROM.S141378
- dc.identifier.doi http://dx.doi.org/10.2147/PROM.S141378
- dc.identifier.issn 1179-271X
- dc.identifier.uri http://hdl.handle.net/10230/41949
- dc.language.iso eng
- dc.publisher Dove medical press
- dc.relation.ispartof Patient Related Outcome Measure. 2018 Oct 24;9:345-52
- dc.rights Copyright © 2018 Evans et al. This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed.
- dc.rights.accessRights info:eu-repo/semantics/openAccess
- dc.rights.uri http://creativecommons.org/licenses/by-nc/3.0/
- dc.subject.keyword PROMIS
- dc.subject.keyword Health-related quality of life
- dc.subject.keyword Outcomes
- dc.subject.keyword Patient reported outcomes
- dc.subject.keyword Quality of life
- dc.title The national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK
- dc.type info:eu-repo/semantics/article
- dc.type.version info:eu-repo/semantics/publishedVersion