Chronic hand eczema in Europe: Patient experiences and perspectives (CHEPEP) in qualitative interviews

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  • dc.contributor.author Rönsch, Henriette
  • dc.contributor.author Schiffers, Frederike
  • dc.contributor.author Ofenloch, Robert
  • dc.contributor.author Weisshaar, Elke
  • dc.contributor.author Buse, Anna-Sophie
  • dc.contributor.author Hansen, Andreas
  • dc.contributor.author John, Swen Malte
  • dc.contributor.author Giménez Arnau, Anna Maria
  • dc.contributor.author Pesqué, David
  • dc.contributor.author Agner, Tove
  • dc.contributor.author Nørreslet, Line Brok
  • dc.contributor.author Loman, Laura
  • dc.contributor.author Romeijn, Geertruida L. E.
  • dc.contributor.author Schuttelaar, Marie Louise Anna
  • dc.contributor.author Košćec Bjelajac, Adrijana
  • dc.contributor.author Macan, Jelena
  • dc.contributor.author Apfelbacher, Christian J.
  • dc.contributor.author Bauer, Andrea
  • dc.date.accessioned 2024-05-24T12:41:31Z
  • dc.date.available 2024-05-24T12:41:31Z
  • dc.date.issued 2023
  • dc.description.abstract Background: Chronic hand eczema (CHE) is a very common skin disease among the European population. It causes itch and pain and, in more severe cases, seriously impairs hand functioning at work and in private life. Objectives: To explore perspectives of people with lived experience on CHE-related problems, wishes and goals. Methods: Following a qualitative approach, we conducted topic-guided interviews in five European countries and applied template analysis to identify recurrent themes among patients with CHE. Results: We interviewed 60 patients in seven outpatient dermatological and occupational medicine clinics in Croatia, Denmark, Germany, the Netherlands and Spain. Five main themes were identified: (1) knowledge about the disease and its course, (2) preventive behaviour, (3) hand eczema therapy, (4) impact on everyday life and (5) attitudes towards CHE and healthcare. Participants did not feel well informed about CHE, especially about causes, triggers and treatment options. Preventive measures were experienced as more or less effective but also cumbersome. Experiences with therapy were diverse. Treatment satisfaction depended on the results and on the perceived support from the treatment teams. Participants found it important to be taken seriously, to receive practical advice, to try out additional treatments or examinations, find new hope and have occupational perspectives. They wished that others could better understand the physical and emotional burden of CHE. Patient support groups were not mentioned. Participants found it important to learn to take care of themselves and accept life with CHE. Conclusions: Due to its annoying symptoms, high visibility and impaired functioning at work and in private life, CHE has a high emotional and social impact. Some people may require support to learn coping with CHE and its prevention. Patients wish for information about causes and triggers. They value physicians who listen to them and keep looking for solutions.
  • dc.format.mimetype application/pdf
  • dc.identifier.citation Rönsch H, Schiffers F, Ofenloch R, Weisshaar E, Buse AS, Hansen A, et al. Chronic hand eczema in Europe: Patient experiences and perspectives (CHEPEP) in qualitative interviews. J Eur Acad Dermatol Venereol. 2023 Jul;37(7):1396-405. DOI: 10.1111/jdv.19055
  • dc.identifier.doi http://dx.doi.org/10.1111/jdv.19055
  • dc.identifier.issn 0926-9959
  • dc.identifier.uri http://hdl.handle.net/10230/60239
  • dc.language.iso eng
  • dc.publisher Wiley
  • dc.relation.ispartof J Eur Acad Dermatol Venereol. 2023 Jul;37(7):1396-405
  • dc.rights © 2023 The Authors. Journal of the European Academy of Dermatology and Venereology published by John Wiley & Sons Ltd on behalf of European Academy of Dermatology and Venereology. This is an open access article under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
  • dc.rights.accessRights info:eu-repo/semantics/openAccess
  • dc.rights.uri http://creativecommons.org/licenses/by/4.0/
  • dc.subject.other Èczema
  • dc.subject.other Mans--Malalties
  • dc.title Chronic hand eczema in Europe: Patient experiences and perspectives (CHEPEP) in qualitative interviews
  • dc.type info:eu-repo/semantics/article
  • dc.type.version info:eu-repo/semantics/publishedVersion

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