Investigating the process of ethical approval in citizen science research: the case of Public Health
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- dc.contributor.author Ficorilli, Antonella
- dc.contributor.author Maccani, Giovanni
- dc.contributor.author Balestrini, Mara
- dc.contributor.author Biggeri, Annibale
- dc.contributor.author De Marchi, Bruna
- dc.contributor.author Froeling, Frederique
- dc.contributor.author Gignac, Florence
- dc.contributor.author Gražulevičienė, Regina
- dc.contributor.author Hoek, Gerard
- dc.contributor.author Kanduč, Tjaša
- dc.contributor.author Kocman, David
- dc.contributor.author Righi, Valeria
- dc.contributor.author Basagaña Flores, Xavier
- dc.date.accessioned 2022-05-26T06:23:16Z
- dc.date.available 2022-05-26T06:23:16Z
- dc.date.issued 2021
- dc.description.abstract Undertaking citizen science research in Public Health involving human subjects poses significant challenges concerning the traditional process of ethical approval. It requires an extension of the ethics of protection of research subjects in order to include the empowerment of citizens as citizen scientists. This paper investigates these challenges and illustrates the ethical framework and the strategies developed within the CitieS-Health project. It also proposes first recommendations generated from the experiences of five citizen science pilot studies in environmental epidemiology within this project.
- dc.description.sponsorship This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 824484. This publication reflects only the authors’ view. The European Commission is not responsible for any use that may be made of the information contained herein.
- dc.format.mimetype application/pdf
- dc.identifier.citation Ficorilli A, Maccani G, Balestrini M, Biggeri A, De Marchi B, Froeling FEM, Gignac F, Grazuleviciene R, Hoek G, Kanduč T, Kocman D, Righi V, Basagaña X. Investigating the process of ethical approval in citizen science research: the case of Public Health. JCOM. 2021;20(06):A04. DOI: 10.22323/2.20060204
- dc.identifier.doi http://dx.doi.org/10.22323/2.20060204
- dc.identifier.issn 1824-2049
- dc.identifier.uri http://hdl.handle.net/10230/53270
- dc.language.iso eng
- dc.publisher Sissa Medialab
- dc.relation.ispartof JCOM. 2021;20(06):A04
- dc.relation.projectID info:eu-repo/grantAgreement/EC/H2020/824484
- dc.rights © The Author(s). This article is licensed under the terms of the Creative Commons Attribution — NonCommercial — NoDerivativeWorks 4.0 License.
- dc.rights.accessRights info:eu-repo/semantics/openAccess
- dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/4.0/
- dc.subject.keyword Citizen science
- dc.subject.keyword Health communication
- dc.subject.keyword Participation and science governance
- dc.title Investigating the process of ethical approval in citizen science research: the case of Public Health
- dc.type info:eu-repo/semantics/article
- dc.type.version info:eu-repo/semantics/publishedVersion