Development and validation of the QUECOMIICAT questionnaire: a tool to assess disease-related knowledge in patients with inflammatory bowel disease

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• dc.contributor.author Casellas, Francesc
• dc.contributor.author Navarro, Ester
• dc.contributor.author Amil, Paloma
• dc.contributor.author Barber, Claudia
• dc.contributor.author Marín, Laura
• dc.contributor.author Guardiola, Jordi
• dc.contributor.author Espín, Eloy
• dc.contributor.author Sainz, Empar
• dc.contributor.author Aldeguer, Xavier
• dc.contributor.author Gallego, Marta
• dc.contributor.author Murciano Gonzalo, M. Francisca
• dc.contributor.author García-Planella, Esther
• dc.contributor.author Martín-de-Carpi, Javier
• dc.contributor.author Mendive, Juan Manuel
• dc.contributor.author González-Mestre, Assumpció
• dc.date.accessioned 2020-04-14T07:12:38Z
• dc.date.available 2020-04-14T07:12:38Z
• dc.date.issued 2019
• dc.description.abstract Introduction: adequate knowledge of inflammatory bowel disease (IBD) is essential for a successful patient-centered management of IBD. Objective: due to the scarcity of up-to-date tools for measuring IBD literacy, this single-center, prospective study aimed to develop and validate a new questionnaire to assess IBD-related knowledge. Material and methods: the study included patients followed up at the Crohn-Colitis Care Unit (UACC) at the Hospital Vall d'Hebron (Barcelona, Spain). Patients admitted to the UACC for the first time were subsequently enrolled into a standard IBD educational program. A pilot questionnaire was developed and validated in 92 IBD patients by determining the internal consistency reliability (Cronbach's α test), feasibility, construct validity (correlation with the Crohn's and Colitis Knowledge [CCKNOW] questionnaire and a knowledge visual analog scale [VAS]) and sensitivity (score change before and after a standard IBD educational program). The questionnaire, named "Qüestionari Coneixements Malaltia Inflamatòria Intestinal Catalunya" (IBD-knowledge questionnaire Catalonia) (QUECOMIICAT) was written in Spanish and had 25 items addressing six dimensions: general concepts, clinic, treatment, surgery, habits and social context. Results: the median (interquartile range) completion time was 15 (10-20) minutes and the floor and ceiling effects were 1.1% and 2.1%, respectively. The Cronbach's α coefficient was α = 0.75. QUECOMIICAT significantly correlated with the VAS (rho = 0.34, p < 0.01) and CCKNOW questionnaires (rho = 0.74, p < 0.01). Patient knowledge significantly increased 24 hours after attending a standard IBD educational program and remained statistically significant one month later (Pearson's test-retest correlation coefficient r = 0.81, p < 0.001). Conclusion: in conclusion, the QUECOMIICAT questionnaire is a new up-to-date tool to assess IBD-related knowledge with good feasibility and validation results for use in the routine clinical practice.
• dc.format.mimetype application/pdf
• dc.identifier.citation Casellas F, Navarro E, Amil P, Barber C, Marín L, Guardiola J, et al. Development and validation of the QUECOMIICAT questionnaire: a tool to assess disease-related knowledge in patients with inflammatory bowel disease. Rev Esp Enferm Dig. 2019 Aug; 111(8):586-92. DOI: 10.17235/reed.2019.6298/2019
• dc.identifier.doi http://dx.doi.org/10.17235/reed.2019.6298/2019
• dc.identifier.issn 1130-0108
• dc.identifier.uri http://hdl.handle.net/10230/44199
• dc.language.iso eng
• dc.publisher Aran Ediciones
• dc.rights © Copyright 2017. SEPD y © ARÁN EDICIONES, S.L.
• dc.rights.accessRights info:eu-repo/semantics/openAccess
• dc.subject.other Intestins -- Inflamació
• dc.subject.other Intestins -- Malalties
• dc.title Development and validation of the QUECOMIICAT questionnaire: a tool to assess disease-related knowledge in patients with inflammatory bowel disease
• dc.type info:eu-repo/semantics/article
• dc.type.version info:eu-repo/semantics/publishedVersion