Browsing by Author "Dyke, Stephanie O. M."

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  • Dyke, Stephanie O. M.; Connor, Kathleen; Nembaware, Victoria; Munung, Nchangwi S.; Reinold, Kathy; Kerry, Giselle; Mbiyavanga, Mamana; Zass, Lyndon; Moldes, Mauricio; Das, Samir; Davis, John M.; Rambla de Argila, Jordi; Spalding, J. Dylan; Evans, Alan C.; Mulder, Nicola; Karamchandani, Jason (Springer, 2023)
    We previously proposed a structure for recording consent-based data use 'categories' and 'requirements' - Consent Codes - with a view to supporting maximum use and integration of genomic research datasets, and reducing ...
  • Dyke, Stephanie O. M.; Philippakis, Anthony A.; Rambla de Argila, Jordi; Paltoo, Dina N.; Luetkemeier, Erin S.; Knoppers, Bartha M.; Brookes, Anthony J.; Spalding, J. Dylan; Thompson, Mark; Roos, Marco; Boycott, Kym M.; Brudno, Michael; Hurles, Matthew; Rehm, Heidi L.; Matern, Andreas; Fiume, Marc; Sherry, Stephen T. (Public Library of Science (PLoS), 2016)
    A systematic way of recording data use conditions that are based on consent permissions as found in the datasets of the main public genome archives (NCBI dbGaP and EMBL-EBI/CRG EGA).
  • Dyke, Stephanie O. M.; De Argila, Jordi Rambla; Flicek, Paul (Nature Research, 2018)
    The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model-"registered access"-to increase and improve access to data requiring an agreement to basic terms and conditions, such as the use of ...

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